Parental Perceptions of the Transition to Adulthood for Their Children With Special Needs

Informed Consent

Explanation and Purpose of the Research

You are being asked to participate in an anonymous research study by researchers at Texas Woman’s University. The purpose of this research is to determine the factors influencing parental stress regarding their child with special needs.  You have been asked to participate in this study because you are a parent and/or guardian to your child with special needs.

Description of Procedures

As a participant in this study, you will be asked to complete an anonymous survey via psychdata. The researcher will ask you questions about your experiences as a parent/guardian of a child with special needs.

Potential Risks

Confidentiality will be protected to the extent that is allowed by law. Participants will complete the survey anonymously with no identifying information requested.  There is a potential risk of loss of confidentiality in all email, downloading and internet transactions.Data will be stored in a secure data collection server (PsychData) and researchers will make no attempts to match ISP addresses to any individual computer. The results of the study will be reported in scientific magazines or journals but your name or any other identifying information will not be included.

There will be a loss of time for completion of the survey. The survey will be kept as short as possible, while still gathering required information.

Recruitment materials and the survey itself will emphasize the voluntary and anonymous nature of the survey. The researchers will make clear in recruitment and survey materials that they will make no efforts to connect individual respondents with their answers, nor will there be any risk to current or future relationships with the researcher or TWU for not participating.

The researchers will try to prevent any problem that could happen because of this research. You should let the researchers know at once if there is a problem and they will help you.

Participation and Benefits

Your involvement in this study is completely voluntary and you may withdraw from the study at any time. Following the completion of the study, you can opt to receive a $5 gift card to Starbuck's for your participation.

Questions Regarding the Study

If you have any questions about the research study you should ask the researchers; their phone numbers are at the top of this form. If you have questions about your rights as a participant in this research or the way this study has been conducted, you may contact the Texas Woman’s University Office of Research and Sponsored Programs at 940-898-3378 or via e-mail at IRB@twu.edu.

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I have read the beginning statement and consent to participate in this study.

Continue ONLY when finished. You will be unable to return or change your answers.